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Recent Posts

  • Mission EB is underway!

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  • Cure EB researcher Prof. Alain Hovnanian wins Scientific Award

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  • EB World Congress 2020

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  • Skin Disease Researchers Win Renewed Grants

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  • 'Butterfly child' given life-saving skin

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Twitter feed

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Useful Links

  • BBC News - The girl whose skin never heals
  • Guardian - My fight to save my daughter's skin
  • YouTube Video - 'This Morning' ITV interview. 18 June 2012

    • Community Support

  • debra.org.uk
  • EBCare.org

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