Spread the word

Please do share this website with others. A major obstacle to fundraising is the lack of awareness of EB and the horror that it causes sufferers and most importantly the hope that now exists to treat and maybe cure the condition. Awareness raising is therefore of paramount importance.

Fundraise online

You could run a Marathon (or maybe less far!), cycle, walk, climb – any sponsored event could help raise awareness and generate much needed funds.

Charity of the Year

Your company could make Cure EB your company’s cause for the year. This would help to spread awareness of EB –anyone who hears about it cannot believe that such a condition exists.


Your child’s school could fundraise for Cure EB. It is a fantastic way to raise awareness.

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