Ways to help

Spread the word

Please do share this website with others. A major obstacle to fundraising is the lack of awareness of EB and the horror that it causes sufferers and, most importantly, the hope that now exists to treat and maybe cure the condition. Awareness raising is therefore of paramount importance.

Organise or take part in an event

Join our Butterfly Brunch Club and host your own brunch- raise money and awareness while enjoying delicious treats with friends!

You could run a Marathon (or maybe less far!), cycle, walk, climb – any sponsored event could help raise awareness and generate much needed funds. Have a look at our upcoming events for inspiration, or choose your own challenge and let us know!


Charity of the Year

Your company could make Cure EB your company’s cause for the year. This would help to spread awareness of EB –anyone who hears about it cannot believe that such a condition exists.

In 2017-18, we were Charity of the Year for Redburn- more on that on our Corporate Partnerships page!


Your child’s school could fundraise for Cure EB. It is a fantastic way to raise awareness. You could host a non-uniform day, bake sale, summer fete, talent show, quiz… well, we suspect the children will be better at ideas than us!

An example, in 2016 we were the charity of the year for the Royal Masonic School for Girls. They raised an incredible £9705.92 over the course of the school year.