Organise an event

There are lots of ways of raising vital funds for EB research.

You could run a marathon (or maybe less far!), cycle, walk, climb – any sponsored event could help raise awareness and generate much needed funds.

If that all sounds a bit energetic, how about hosting your own Butterfly Brunch Club? You can raise money by eating delicious food with your friends- ideal!

Why not host your own Butterfly Brunch Club?

Maybe you can think of an even better idea for fundraising? Try looking at some of our previous events for inspiration.

Some examples of fabulous fundraising events

Loel’s Lock-Up Choc

Amazing Loel gave up chocolate for a whole year and raised over £1800 through sponsorship. Fantastic work Loel- not sure if we could do the same!

Well done Loel!


Cake Sale

Aimee and her friends held a cake sale at school to raise money for Cure EB- yum!

Yorkshire 3 Peaks Challenge

Thanks to Liberty, Helen, Stacey & Mark from Mc Plan & Site Services, who walked 24 miles, with over 5000ft of ascent, over the challenging Yorkshire Pennines!


Birthday donations

Some of our wonderful supporters ask for donations to Cure EB in lieu of birthday presents. If you feel that you already have more than enough ‘stuff’, perhaps you could ask your loved ones to donate on your behalf!

Birthday balloons? Ask your friends to donate to Cure EB as your birthday present!