28 February 2019 – Rare Disease Day
This year’s theme is ‘Bridging health and social care’. Why not host a Butterfly Brunch to commemorate the day and raise awareness (and a little money) for Cure EB?
28 April 2019 – Virgin Money London Marathon
We have places for runners in this year’s marathon- get in touch if you’re interested!
16 May 2019 – Cure EB Silver Butterfly Dinner at RIBA
September 22 2019 – Cure EB Butterfly Run
Following the success of our inaugural Butterfly Run in 2018, we’re planning another fun-filled day in the Olympic Park! Watch this space for more information.