Coming up…


28 February 2019 – Rare Disease Day

This year’s theme is ‘Bridging health and social care’. Why not host a Butterfly Brunch to commemorate the day and raise awareness (and a little money) for Cure EB?

28 April 2019 – Virgin Money London Marathon

We have places for runners in this year’s marathon- get in touch if you’re interested!

16 May 2019 – Cure EB Silver Butterfly Dinner at RIBA

September 22 2019 – Cure EB Butterfly Run

Following the success of our inaugural Butterfly Run in 2018, we’re planning another fun-filled day in the Olympic Park! Watch this space for more information.

Take a look at our previous events