How much of my donation goes to directly to support research?

Cure EB is run by a team of volunteers. No salaries are paid. Administrative costs, events and fundraising activities are paid for by Sohana’s parents to ensure that 100% of your donation goes directly to research.

How can I make a donation?

Thank you for asking! We gladly and gratefully accept donations on BT Donate
and Just Giving or by mail (CAF or cheque payable to ‘Cure EB’ and posted to 10 Huntingdon Street, London N1 1BU, UK

For other donation options please email

Can I make a corporate matching donation?
Most companies have a ‘matching’ policy. Please contact your representative dealing with charitable giving.

Can I gift aid my donation?
Yes. Please download a form here if you are posting in a cheque

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