How much of my donation goes to directly to support research?

Cure EB senior positions are covered by Trustees and Cure EB advisory board members. We have recently appointed an Administrator, and use external accountants and auditors.

All operational costs, including events and fundraising activities, are underwritten to ensure that 100% of your donation goes directly to research.

Please see our Accounts page for more information.

How can I make a donation?

Thank you for asking! We gladly and gratefully accept donations on Just Giving, PayPal, or by mail (CAF or cheque payable to ‘Cure EB’ and posted to our office at Cure EB, 175-185 Grays Inn Road, London, WC1X 8UE)

For other donation options please email

Can I make a corporate matching donation?

Most companies have a ‘matching’ policy. Please contact your representative dealing with charitable giving.

Can I gift aid my donation?

Absolutely! You can register online or download a form if you are posting in a cheque.