Cure EB (formerly Sohana Research Fund) is dedicated to finding effective treatments and a cure for Epidermolysis Bullosa. It was set up in 2011, by the parents of Sohana Collins, a young child with a severe form of the condition.
When Sohana was born in 2002, there was very little prospect of an effective treatment let alone cure, but breakthroughs in research underpin the significant hope that this is no longer the case.
Critical funding is required for key projects that will harness this research optimism. EB is considered a rare condition and as such does not attract government funding. This means that all research is private donor and private company led. Our aim is to accelerate research, take results and aid translation into treatments.
