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Cure EB researcher Prof. Alain Hovnanian wins Scientific Award

by richard | Feb 25, 2021 | Latest News, Latest news for rolling

We are hugely proud that the work of Professor Alain Hovnanian, one of the primary researchers on the EB Graft trial, has been recognised with the EURORDIS Black Pearl Scientific Award. Since 2012, EURORDIS-Rare Diseases Europe has organised the Black Pearl Awards to...

Cure EB joins consortium to fund anti-fibrotic treatment

by sharmila | Nov 27, 2018 | Latest News

We’re pleased to announce that Cure EB is joining three other EB charities to fund the clinical development of a new anti-fibrotic drug called TXA127. Click to read press release from Constant Pharmaceuticals.  

Researchers discover cause of aggressive skin cancer in RDEB

by sharmila | Sep 7, 2018 | Latest News

Scientists at the Sidney Kimmel Cancer Center at Jefferson University have discovered the cause of aggressive skin cancers in Recessive Dystrophic Epidermolysis Bullosa (RDEB) Click to see report from Jefferson University

First Patient Dosed with Dystrophic Epidermolysis Bullosa Treatment, KB103

by sharmila | Jun 11, 2018 | Latest News

Krystal Biotech announced that the first patient has been dosed in the Phase 1/2 clinical trial of its drug, KB103, for the treatment of dystrophic epidermolysis bullosa (DEB).   (source: www.raredr.com, May 10th 2018)

CU Anschutz scientists awarded $3.8 million Department of Defense grant

by sharmila | Jun 11, 2018 | Latest News

String of major recent grants underlines promise of new potential treatments for Epidermolysis Bullosa and other chronic skin wounds   (source: eurekaalert.org, April 12th 2018)

Sohana speaking at #WEDay UK on 9 March 2016

by sharmila | Jun 16, 2016 | Latest News

Sohana speaking at #WEDay UK on 9 March 2016
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Recent Posts

  • Cure EB researcher Prof. Alain Hovnanian wins Scientific Award
  • Thank you www.experiencedays.co.uk for their kind donation to the St. Andrew’s Montessori raffle
  • EB World Congress 2020
  • Skin Disease Researchers Win Renewed Grants
  • Big Give Christmas Challenge 2018

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Recent Posts

  • Cure EB researcher Prof. Alain Hovnanian wins Scientific Award

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  • EB World Congress 2020

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  • Skin Disease Researchers Win Renewed Grants

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  • 'Butterfly child' given life-saving skin

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Useful Links

  • BBC News - The girl whose skin never heals
  • Guardian - My fight to save my daughter's skin
  • YouTube Video - 'This Morning' ITV interview. 18 June 2012
  • Community Support

  • debra.org.uk
  • EBCare.org

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Office address: 175-185 Grays Inn Road, London WC1X 8UE | Email: contact@cure-eb.org | Telephone: 0203 405 8433
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