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Sohana speaking at #WEDay UK on 9 March 2016

by sharmila | Jun 16, 2016 | Latest News

Sohana speaking at #WEDay UK on 9 March 2016

BBC News – The promise of gene editing

by sharmila | Dec 18, 2015 | Latest News

Sharmila Nikapota, the mother of a child with a rare genetic disorder, has high hopes for gene editing…read more

Mirror Newspaper – Schoolgirl’s skin blisters and burns if mum hugs her

by sharmila | Sep 29, 2015 | Latest News

http://www.mirror.co.uk/news/real-life-stories/schoolgirls-skin-blisters-burns-mum-6491436

Guardian Newspaper – My fight to save my daughter’s skin

by sharmila | Nov 22, 2014 | Latest News

hhttp://www.theguardian.com/lifeandstyle/2014/nov/22/our-fight-to-save-sohana-research-fund

The Silver Butterfly Dinner 2015 raised over £522,000

by sharmila | May 22, 2013 | Latest News

The Silver Butterfly Dinner hosted and organised by the Sohana Research Fund at RIBA on 14 May 2015 raised over £522,000 for RDEB research. 100% of proceeds from the night go to research.

Recent Posts

  • Big Give Christmas Challenge 2018
  • Cure EB joins consortium to fund anti-fibrotic treatment
  • Researchers discover cause of aggressive skin cancer in RDEB
  • First Patient Dosed with Dystrophic Epidermolysis Bullosa Treatment, KB103
  • CU Anschutz scientists awarded $3.8 million Department of Defense grant

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Recent Posts

  • Big Give Christmas Challenge 2018

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  • Cure EB joins consortium to fund anti-fibrotic treatment

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  • Researchers discover cause of aggressive skin cancer in RDEB

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  • First Patient Dosed with Dystrophic Epidermolysis Bullosa Treatment, KB103

    Learn more...
  • CU Anschutz scientists awarded $3.8 million Department of Defense grant

    Learn more...

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Useful Links

  • BBC News - The girl whose skin never heals
  • Guardian - My fight to save my daughter's skin
  • YouTube Video - 'This Morning' ITV interview. 18 June 2012

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