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Big Give Christmas Challenge 2018

November 28, 2018sharmilaUncategorized

From midday on Tuesday 27th November to midday on Tuesday 4th December, have your Christmas donation doubled through the Big Give’s Christmas Challenge.

Click here to donate!

Cure EB joins consortium to fund anti-fibrotic treatment

We’re pleased to announce that Cure EB is joining three other EB charities to fund the clinical development of a new anti-fibrotic drug called TXA127.

Click to read press release from Constant Pharmaceuticals.

 

Researchers discover cause of aggressive skin cancer in RDEB

Scientists at the Sidney Kimmel Cancer Center at Jefferson University have discovered the cause of aggressive skin cancers in Recessive Dystrophic Epidermolysis Bullosa (RDEB)
Click to see report from Jefferson University

First Patient Dosed with Dystrophic Epidermolysis Bullosa Treatment, KB103

Krystal Biotech announced that the first patient has been dosed in the Phase 1/2 clinical trial of its drug, KB103, for the treatment of dystrophic epidermolysis bullosa (DEB).

 

(source: www.raredr.com, May 10th 2018)

CU Anschutz scientists awarded $3.8 million Department of Defense grant

String of major recent grants underlines promise of new potential treatments for Epidermolysis Bullosa and other chronic skin wounds

 

(source: eurekaalert.org, April 12th 2018)

‘Butterfly child’ given life-saving skin

A child has been given a new genetically modified skin that covers 80% of his body, in a series of lifesaving operations.

 

(source: BBC News, 8th November 2017)