EB Family Day 2026
Thank you to everyone who joined us at our EB Family Day on Sunday 4th October!...
20 October, 2026 No commentEpidermolysis Bullosa is an incurable, progressive, debilitating and very painful genetic skin condition which causes internal and external blisters at the slightest friction. In its most serious form, it causes wounds that are like having very severe burns, eventually leading to skin cancer. Cure EB exist to find and fund research into treatments and, ultimately, a cure for this devastating disease.

The largest clinical trial of its kind reports positive results for those with RDEB.
Get your hands on a beautiful, exclusive hard-back edition of Binky’s Time To Fly!
Funds Raised

Projects Funded
Treatment In Delivery
Through targeted funding and collaboration, we strive for treatments that provide symptomatic relief, quality of life change, and ultimately, a cure for all types of EB.
Thank you to everyone who joined us at our EB Family Day on Sunday 4th October!...
20 October, 2026 No commentThis year, EB Awareness Week runs from Sunday 25th October to Saturday 31st October. ...
19 October, 2026 No commentThe sun shone on our Butterfly Runners yesterday! We had a brilliant crowd of runners and supporters...
05 October, 2026 No comment