Epidermolysis Bullosa is an incurable, progressive, debilitating and very painful genetic skin condition which causes internal and external blisters at the slightest friction. In its most serious form, it causes wounds that are like having very severe burns, eventually leading to skin cancer. Cure EB exist to find and fund research into treatments and, ultimately, a cure for this devastating disease.
Mission EB
results are in!
The largest clinical trial of its kind reports positive results for those with RDEB.
Exclusive Hardback Book
Get your hands on a beautiful, exclusive hard-back edition of Binky’s Time To Fly!
Living with EB
Our Research and Impact
£20m
Funds Raised
42
Projects Funded
1st
Treatment In Delivery
Through targeted funding and collaboration, we strive for treatments that provide symptomatic relief, quality of life change, and ultimately, a cure for all types of EB.
Chemoprevention of RDEB SCC
Current Projects, EB Cancer Therapy, Whole Body Treatment
Replay
Current Projects, Gene Therapy, Quality of Life ChangeLatest News
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Research Update at the Royal Institution
We were delighted to welcome donors, researchers, clinicians, partners and EB families to our Resear...
31 March, 2026 No comment