Butterfly Speaker Lunch 2025
Hosted at Orrery in London’s Marylebone, our Butterfly Speaker Lunch began with champagne on the bal...
04 December, 2025 No commentEpidermolysis Bullosa is an incurable, progressive, debilitating and very painful genetic skin condition which causes internal and external blisters at the slightest friction. In its most serious form, it causes wounds that are like having very severe burns, eventually leading to skin cancer. Cure EB exist to find and fund research into treatments and, ultimately, a cure for this devastating disease.

The largest clinical trial of its kind reports positive results for those with RDEB.
Get your hands on a beautiful, exclusive hard-back edition of Binky’s Time To Fly!
Funds Raised

Projects Funded
Treatment In Delivery
Through targeted funding and collaboration, we strive for treatments that provide symptomatic relief, quality of life change, and ultimately, a cure for all types of EB.
Hosted at Orrery in London’s Marylebone, our Butterfly Speaker Lunch began with champagne on the bal...
04 December, 2025 No commentEB Awareness Week takes place every year between 25th-31st October. It's an international campaign t...
28 October, 2025 No comment