Raising funds for Epidermolysis Bullosa research.

Epidermolysis Bullosa is an incurable, progressive, debilitating and very painful genetic skin condition which causes internal and external blisters at the slightest friction. In its most serious form, it causes wounds that are like having very severe burns, eventually leading to skin cancer. Cure EB exist to find and fund research into treatments and, ultimately, a cure for this devastating disease.

Save the Date!

Butterfly Run London 2026

The 2026 Butterfly Run will be on 4th October – save the date!

Mission EB
results are in!

The largest clinical trial of its kind reports positive results for those with RDEB.

Exclusive Hardback Book

Get your hands on a beautiful, exclusive hard-back edition of Binky’s Time To Fly!

Living with EB

Our Research and Impact

£20m

Funds Raised

42

Projects Funded

1st

Treatment In Delivery

Through targeted funding and collaboration, we strive for treatments that provide symptomatic relief, quality of life change, and ultimately, a cure for all types of EB. 

Current Projects, Drug Therapy, Symptom Relief
Current Projects, Gene Therapy, Quality of Life Change

Latest News

Fight for a life free of pain. To end EB. Research the cure.